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Mary Ellen BarrettEveryday Miracles
by Mary Ellen Barrett

 

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Link Resources and References for Parents of Special Needs Children

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Be sure to visit Mary Ellen Barrett's blog
Tales from the Bonny Blue House (http://maryellenb.typepad.com)

Link Resources and References for
Parents of Special Needs Children

 

 

The Special Needs Child and The Experts

"You should leave schooling your child to the experts."
"There are experts who can deal with that for you."
"Read this book, it's written by an expert."
"You should really call in an expert for him/her."


These are a few phrases that you will hear over the course of your experience in raising your child.   These phrases tend to pop up when discussing the typical child as well as the special needs child but with the SN child they are more frequent and the tone is different.

We've all heard the "tone".  That "aren't you cute for thinking you know better but now let’s get serious and call in an expert" tone.

Well I have few words about experts and their place in your child's education.

First and foremost.  It’s important for you to know that no one, no matter how many degrees or how much experience they have, no one is an expert in your child but you. You are nodding your head, "yes, yes, I know."  Don't dismiss the concept that easily.  Think about it.  You have been with this child since the beginning. Ever since he was a two-celled teeny little life within you.  You know every look, every quirk, every movement, every gesture.  You know what makes him crazy and what calms him down.  You know what he loves and what he dislikes. You often know this before he does.  You know within a few minutes of his waking what kind of day it's going to be and how much you are going to get done. You know his strengths and weaknesses intimately and you are passionate about his success.

You don't get that kind of knowledge in graduate school.  It is this kind of  knowledge that will determine your child's success. Not a book, or a teacher or a therapist.  You.  God chose you for this child and this child for you.  He imprinted on your heart everything you need to know to fulfill His will for this person. Pray often about your plans and maintain a constant dialog with God.

Mothers have an edge on everyone else in the world. God gave us the ability to be intuitive about our children in a way that no one else can be. Even the dads, the best dads in the world, don't know the child the way we do.  We've all heard the stories of the mom who wakes up in the night knowing something is wrong and comes to find one of her children in some kind of distress. A high fever, a blanket wrapped around their neck, some situation that requires immediate attention.  These are God's gifts to us; an overworked guardian angel and an inexplicable connection that alerts us to what is needed.

That doesn't mean that the expertise of a specialist isn't necessary.  Speech therapists, occupational therapists, physical therapists, psychologists, etc... These are specialized fields of study that may be necessary to your child's success. You can receive these services through your school district, although many people choose not to involve the schools in their lives.  Some people have health insurance that covers a lot of these services. This is something you might want to investigate. School districts provide many valuable services but it does make you somewhat at their mercy. If their assessment does not agree with yours or even your physicians then you are obligated to go through a long process involving a lot of meetings and arguing. It’s worth it to accomplish your goals but it is certainly stressful and exhausting.

Either way you decide to proceed I think we can all agree that recognizing that you are the foremost expert in your child does not preclude your seeking help in some specialized fields. Make sure that the therapist is one who supports your lifestyle. A therapist should not be undermining your life, your faith or your authority your child or to anyone else.  Make sure that it is a good fit personality-wise as well. You are likely to be together for a while and it makes no sense to have to see someone in your home or trek to someone’s office on a regular basis, who you find annoying.  Make sure that there are things you can do to reinforce the therapist’s work at home.  Have them teach you as well so that all lessons can become part of your family life. This makes the whole family an important part of the therapy and helps the child improve at a quicker rate and when you see the improvement don’t forget to look in the mirror and congratulate the expert!


Mary Ellen BarrettMary Ellen Barrett is a home educating mother of seven children.  She writes a column for The Long Island Catholic called Life in Our Domestic Church and speaks at conferences about homeschooling and raising a special needs child. Mary Ellen writes about the daily life and happenings in her Catholic home on her weblog, Tales from the Bonny Blue House (http://maryellenb.typepad.com) and about a Catholic celebration of Christmas at O Night Divine (www.onightdivine.com). She is currently at work on a book about life as a mom of a large family and an Advent Book of Days.


© Mary Ellen Barrett 2007

03/10/08

Additional Columns by Mary Ellen Barrett

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